ABOUT SCOLIOSIS PHILIPPINES
For every Filipino living with scoliosis.
Scoliosis can affect much more than the spine. It can influence how we move, how we see ourselves, how we navigate healthcare, and how connected we feel.
Scoliosis Philippines is a patient-led community and advocacy initiative working to make scoliosis information, support, and awareness more accessible to Filipinos.
WHY WE EXIST
You don't have to navigate scoliosis alone.
Too many people encounter scoliosis with more questions than answers.
What does that curve mean? Where should I go? Do I need treatment? What happens if I need a brace? Will people understand?
Purpose
To ensure that no Filipino affected by scoliosis has to face the journey alone.
Mission
To improve access to scoliosis care through patient support, awareness, and early detection, healthcare navigation, empowerment, digital health innovation, systems strengthening, and meaningful partnerships.
Vision
A Philippines where every person affected by scoliosis has the opportunity for early detection, timely intervention, informed support, and equitable access to care.
Scoliosis Philippines exists to help people and families navigate those questions with reliable information, practical resources, and a supportive community.
WHAT WE BELIEVE
Awareness should lead to understanding—not fear.
Our work is grounded in patient-centered communication, reliable information, compassion, and respect for individual healthcare decisions.
Evidence Matters
We promote reliable, evidence-informed information and encourage appropriate professional medical care.
Patients Deserve a Voice
People living with scoliosis should be heard in conversations about their care and healthcare experiences.
Early Awareness Matters
Understanding possible signs can help people seek appropriate assessment when needed.
No One Should Feel Ashamed
Scoliosis is a medical condition—not something a person should be blamed, mocked, or stigmatized for.
WHAT WE DO
Helping people understand scoliosis and feel supported.
Education & Awareness
We share accessible, responsible information about scoliosis, signs to look out for, diagnosis, and treatment options—encouraging people to seek assessment from qualified healthcare professionals.
Community & Peer Support
We help patients and families connect with people who understand their experiences, exchange practical tips, and find reassurance throughout their scoliosis journey.
Patient Advocacy
We raise patient and caregiver perspectives in conversations about scoliosis care, access to services, and policies that affect people living with the condition.
Public Engagement
Through awareness activities and community conversations, we work to challenge myths, reduce stigma, and help more people talk about scoliosis with understanding.
Resource Sharing
We help people find educational resources and practical guidance they can use when speaking with their healthcare team and navigating questions about care.
Collaboration
We seek opportunities to work with patients, families, health professionals, and aligned organizations to strengthen scoliosis awareness and patient-centered support.
OUR STORY
It started with a need for understanding.
Scoliosis Philippines began in 2011 with a simple belief: no scoliosis patient should face scoliosis alone.
Founded by patient advocate Amanda Bonife, the initiative started as an online community where people affected by scoliosis could find information, share experiences, and connect with others who understood their challenges.
As the community grew, so did its purpose.
OUR COMMUNITY
Built with the scoliosis community.
Scoliosis Philippines is shaped by the experiences, questions, challenges, and voices of people living with scoliosis—and the families and caregivers supporting them.
People Living With Scoliosis
Children, teens, and adults navigating life with scoliosis.
Parents & Caregivers
Families supporting a child or loved one through diagnosis and treatment.
Healthcare & Education
Professionals, schools, and organizations helping improve scoliosis awareness.
Supporters & Advocates
People helping create a more informed and compassionate scoliosis community.
OUR APPROACH
Information, support, and advocacy—not a substitute for medical care.
We believe good scoliosis advocacy should help people become better informed—not tell them what medical treatment they personally need.
Our educational content is designed to help people understand scoliosis, prepare questions, recognize when professional assessment may be appropriate, and navigate their experiences with greater confidence.
Diagnosis and treatment decisions should be made with qualified healthcare professionals who can assess each person’s individual circumstances.
OUR JOURNEY
Built with the scoliosis community.
From a Facebook community to a growing patient-led movement, our journey has been shaped by the needs and voices of Filipinos affected by scoliosis.
2011
Where It All Began
Created the Help Fight Scoliosis Facebook group, establishing an online space for people affected by scoliosis to connect and share their experiences.
2018
Advancing National Awareness
Championed Presidential Proclamation No. 620, Series of 2018, declaring June as Scoliosis Awareness Month in the Philippines.
2021
Connecting and Collaborating
Participated in the Facebook Community Accelerator Program cohort and organized the first online Scoliosis Summit to support discussions on developing a scoliosis control and prevention program.
2024
Encouraging Early Recognition
Launched #StripesFitCheck to promote scoliosis awareness and encourage early recognition of possible signs of scoliosis.
TODAY
Where We Are Now
Our journey is still unfolding. Whether you are living with scoliosis, supporting a loved one, or working to improve scoliosis care, there is a place for you in this community.
THE PEOPLE BEHIND THE MISSION
Meet the people behind Scoliosis Philippines.
Lived experience. Community leadership. A shared commitment to care.
Guiding Scoliosis Philippines through responsible governance, collaboration, and patient advocacy.
Amanda Bonife
Founder and Board Chair
Patient Advocacy • Social Innovation • Community Building
Nestor Carlon Jr.
President
Medical Technology • Academe • Cooperative Leadership
WHAT GUIDES US · OUR CORE VALUES
People first. Progress together.
Our work is grounded in the belief that no Filipino affected by scoliosis should have to navigate the journey alone. Patient voices and lived experience should help shape awareness, support, and better pathways to care.
Compassion
Patient leadership
Equity & inclusion
Innovation
Collaboration
Integrity
OUR COMMUNITY & PARTNERS
Working together for better scoliosis awareness.
Improving scoliosis awareness takes a community. Feature verified partners, healthcare collaborators, schools, organizations, and advocates here where appropriate.
Wherever you are in your scoliosis journey, you belong here.
Whether you’re newly diagnosed, supporting a child, living with scoliosis as an adult, or simply looking for reliable information—we’re here to help you find your next step.