ABOUT SCOLIOSIS PHILIPPINES
For every Filipino living with scoliosis.
Scoliosis can affect much more than the spine. It can influence how we move, how we see ourselves, how we navigate healthcare, and how connected we feel.
Scoliosis Philippines is a patient-led community and advocacy initiative working to make scoliosis information, support, and awareness more accessible to Filipinos.
WHY WE EXIST
You don't have to navigate scoliosis alone.
Too many people encounter scoliosis with more questions than answers.
What does that curve mean? Where should I go? Do I need treatment? What happens if I need a brace? Will people understand?
Scoliosis Philippines exists to help people and families navigate those questions with reliable information, practical resources, and a supportive community.
WHAT WE BELIEVE
Awareness should lead to understanding—not fear.
Our work is grounded in patient-centered communication, reliable information, compassion, and respect for individual healthcare decisions.
Evidence Matters
We promote reliable, evidence-informed information and encourage appropriate professional medical care.
Patients Deserve a Voice
People living with scoliosis should be heard in conversations about their care and healthcare experiences.
Early Awareness Matters
Understanding possible signs can help people seek appropriate assessment when needed.
No One Should Feel Ashamed
Scoliosis is a medical condition—not something a person should be blamed, mocked, or stigmatized for.
WHAT WE DO
Helping people understand scoliosis and feel supported.
Education & Awareness
Helping Filipinos understand scoliosis, its signs, diagnosis, and treatment.
Early Detection
Promoting awareness of signs that may warrant assessment by a qualified healthcare professional.
Patient Support
Creating practical resources for people living with scoliosis and their families.
Community
Connecting people who understand the realities of living with scoliosis.
Advocacy
Amplifying patient voices and raising awareness of issues affecting scoliosis care.
Healthcare Navigation
Helping people understand where professional assessment and appropriate care fit into their journey.
OUR STORY
It started with a need for understanding.
Scoliosis Philippines grew from a need for better awareness, clearer information, and a community where people affected by scoliosis could feel seen and supported.
Amanda – The Backbone of The Scoliosis Community
Having been diagnosed with scoliosis, Amanda Glenda Bonife joined different scoliosis support groups online in her pursuit of looking for possible treatments for her condition.
OUR COMMUNITY
Built with the scoliosis community.
Scoliosis Philippines is shaped by the experiences, questions, challenges, and voices of people living with scoliosis—and the families and caregivers supporting them.
People Living With Scoliosis
Children, teens, and adults navigating life with scoliosis.
Parents & Caregivers
Families supporting a child or loved one through diagnosis and treatment.
Healthcare & Education
Professionals, schools, and organizations helping improve scoliosis awareness.
Supporters & Advocates
People helping create a more informed and compassionate scoliosis community.
OUR APPROACH
Information, support, and advocacy—not a substitute for medical care.
We believe good scoliosis advocacy should help people become better informed—not tell them what medical treatment they personally need.
Our educational content is designed to help people understand scoliosis, prepare questions, recognize when professional assessment may be appropriate, and navigate their experiences with greater confidence.
Diagnosis and treatment decisions should be made with qualified healthcare professionals who can assess each person’s individual circumstances.
OUR JOURNEY
Built with the scoliosis community.
From a Facebook community to a growing patient-led movement, our journey has been shaped by the needs and voices of Filipinos affected by scoliosis.
2011
Founding
Created the Help Fight Scoliosis group on Facebook.
2018
Awareness
Championed Presidential Proclamation No. 620, S. 2018, declaring June as Scoliosis Awareness Month
2021
Community
Organized the first online Scoliosis Summit for the creation of the control and prevention program
2024
Advocacy
#StripesFitCheck Launched
TODAY
Where We Are Now
THE PEOPLE BEHIND THE MISSION
Meet the people behind Scoliosis Philippines.
Lived experience. Community leadership. A shared commitment to care.
Guiding Scoliosis Philippines through responsible governance, collaboration, and patient advocacy.
Amanda Bonife
Founder and Board Chair
Patient Advocacy • Social Innovation • Community Building
Nestor Carlon Jr.
President
Medical Technology • Academe • Cooperative Leadership
OUR COMMUNITY & PARTNERS
Working together for better scoliosis awareness.
Improving scoliosis awareness takes a community. Feature verified partners, healthcare collaborators, schools, organizations, and advocates here where appropriate.
Wherever you are in your scoliosis journey, you belong here.
Whether you’re newly diagnosed, supporting a child, living with scoliosis as an adult, or simply looking for reliable information—we’re here to help you find your next step.