OUR JOURNEY · SINCE 2011
From a Community to a Movement
What began as a small online community has grown into a patient-led movement advocating for better scoliosis awareness, support, and care in the Philippines.
Since 2011, we have brought patients, families, and advocates together around one shared belief: no scoliosis patient should face scoliosis alone.
Every milestone represents people coming together to make a difference.
WHERE IT ALL BEGAN
Every Movement Starts with a Reason
Scoliosis Philippines began in 2011 with a simple belief: no scoliosis patient should face scoliosis alone.
Founded by patient advocate Amanda Bonife, the initiative started as an online community where people affected by scoliosis could find information, share experiences, and connect with others who understood their challenges.
As the community grew, so did its purpose.
What started as an effort to bring people together developed into a broader commitment to scoliosis awareness, patient support, and healthcare advocacy. Over the years, Scoliosis Philippines has continued to build connections and work toward a future where people affected by scoliosis have better access to information, support, and appropriate care.
2011 — 2026
Growing Together, Making a Difference
Every milestone represents another step toward a future where people affected by scoliosis are better informed, supported, and represented.
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2011
Where It All Began
Created the Help Fight Scoliosis Facebook group, establishing an online space for people affected by scoliosis to connect and share their experiences.
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2013
Expanding Awareness
Launched the Scoliosis Awareness Philippines Facebook page to broaden public awareness and share scoliosis-related information.
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2015
Building a Stronger Community
Created the Scoliosis Philippines Support Group on Facebook, strengthening opportunities for patients and families to find connection and peer support.
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2017
Formalizing Our Advocacy
Registered as Scoliosis Philippines Inc. with the Securities and Exchange Commission (SEC) and became a member of the Philippine Alliance of Patient Organizations (PAPO).
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2018
Advancing National Awareness
Championed Presidential Proclamation No. 620, Series of 2018, declaring June as Scoliosis Awareness Month in the Philippines.
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2019
Strengthening Our Organization
Registered as Scoliosis Philippines Support Group Inc., marking another step in the organization's development.
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2021
Connecting and Collaborating
Participated in the Facebook Community Accelerator Program cohort and organized the first online Scoliosis Summit to support discussions on developing a scoliosis control and prevention program.
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2022
Advancing Patient Data
Launched the Scoliosis Philippines Patient Registry mobile application, creating a platform to support patient data collection and inform discussions about scoliosis care.
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2023
Contributing to Innovation and Healthcare Policy
Developed the ScolioSynch concept through the Philippine Datathon, participated in the Musculoskeletal Clinical Practice Guideline consensus panel, and joined the AIM-SEELL and PAPO Postgraduate Program in Healthcare Leadership and Management cohort.
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2024
Encouraging Early Recognition
Launched #StripesFitCheck to promote scoliosis awareness and encourage early recognition of possible signs of scoliosis.
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2025
Advancing Legislative Advocacy
Drafted the proposed National Scoliosis Care Act, advancing efforts to strengthen scoliosis care and support through national policy. -
2026
Taking the Next Step in Policy Advocacy
Submitted the proposed National Scoliosis Care Act to the Department of Health (DOH) for technical review and policy integration.
OUR CONTINUING WORK
More Than Milestones
Our journey is about more than the years and achievements. It is about building a community where people affected by scoliosis can find understanding, reliable information, and opportunities to make their voices heard.Awareness and Early Recognition
Promoting scoliosis awareness and encouraging people to seek appropriate professional assessment when signs of scoliosis are suspected.
Community and Peer Support
Creating opportunities for patients and families to connect, share experiences, and feel less alone in their scoliosis journey.
Patient Advocacy and Research
Supporting patient-centered initiatives, contributing to discussions about scoliosis care, and exploring how patient experiences and data can inform better healthcare decisions.
Policy and Healthcare Advocacy
Working with relevant stakeholders to advance conversations about scoliosis care, patient needs, and opportunities to improve healthcare access in the Philippines.
LOOKING AHEAD
Our Journey Continues
From our first online community to our ongoing work in awareness, patient support, and healthcare advocacy, every step has brought us closer to our vision.
But there is still more to do.
We will continue working to raise awareness, strengthen patient voices, support informed healthcare decisions, and advocate for better scoliosis care in the Philippines.
Because behind every initiative, every conversation, and every milestone are people whose experiences matter.
No scoliosis patient should face scoliosis alone.
BE PART OF OUR JOURNEY
Our Journey Is Still Unfolding
Whether you are living with scoliosis, supporting a loved one, or working to improve scoliosis care, there is a place for you in this community.