About Us
Pioneering Support and Advocacy
Scoliosis Philippines Support Group Inc. (Scoliosis Philippines) is registered with the Securities and Exchange Commission (SEC) as a non-profit and non-stock organization anchored by the mission to attain a society where equity, social justice, and rights of scoliosis patients’ persons are served through various strategies, programs and projects.
What We Do
Awareness
Scoliosis Philippines have been a staunch advocate in campaigning for awareness and early detection. In partnership with stakeholders, civic organizations, public and private sectors we have successfully organized awareness events and free screening which highlights prevention, management and addressing the burden of patients.
Support
Our community is a safe space that connects and shares experiences through peer and parent support. With the help of our volunteers and partners we have conducted fundraising, patient meetups, learning, wellness activities and expressive art sessions to support patients cope with the challenges of scoliosis.
Empowerment
Following our community development plan, we conducted a series of strategic planning workshops, leadership development and capacity building, manual of operations and policies, programs for learning, empowerment and designed a mobile app for patient registry and access to community resources.
Our Core Values
Accountability & Transparency
Commitment
Excellence
Inclusion
Partnership
Our Strategic Plan
Resources Mobilization
Mobilizing resources for organizational strengthening and service delivery
Systems Development
Establishing systems towards efficient operations
Partnership Development and Strengthening
Strengthening partnerships and multi-stakeholders’ engagement
Capacity Development
Building organizational and human capacities
Advocacy and Communication
Communicating and raising awareness
Data Management
Ensuring evidence-based information for internal and external collaboration
Service Delivery
Providing effective and efficient services
Policy Development
Developing policies for bigger scope and coverage of services
Our Priority Projects
PCNC Certification
The Philippine Council for NGO Certification ensures the standards of good governance, management and accountability.
PCNC certification is used by the Bureau of Internal Revenue as a basis in granting donee institution status.
Awareness Campaign
Scoliosis can aggressively progress but with early detection and early intervention it can potentially save a patient’s life from debilitating effects and complications.
Patient Concierge Service
This service is designed to elevate patient care in providing coordination and assistance for pre and post hospitalization of patients undergoing surgery.
Learning Development and Skills Training
Many scoliosis patients have suffered from workforce discrimination and social stigma. We wish to uplift their lives by motivating and providing learning and livelihood opportunity.
Holistic Wellness and Support Program
Our mental health is as important as our physical wellbeing. We aim to give a free Holistic Wellness and Support Program that promotes mindfulness and self care.
Child Life Therapy
Through therapeutic play, education and creative activities the program will provide the emotional, social and developmental needs of patients in coping while in the halo-gravity traction - a 3-4 week pre surgical treatment for severe curves of >90 degrees and above,
We are looking for partners, sponsors and volunteers who are committed to support our mission.
Together, we can bridge the gap and impact the lives of the underserved scoliosis patients.
History of Scoliosis Philippines
Est. 2011.
Created Help Fight Scoliosis group on Facebook.
Created Scoliosis Awareness Philippines page on Facebook.
Created Scoliosis Philippines Support Group on Facebook.
Registered with the SEC as SCOLIOSIS PHILIPPINES INC.
Became a member of the Philippine Alliance of Patient Organizations (PAPO)
Championed the Presidential Proclamation No. 620 S. 2018 declaring June as Scoliosis Awareness Month
Registered with the SEC as Scoliosis Philippines Support Group Inc.
Facebook Community Accelerator Program cohort
Organized the first online Scoliosis Summit for the creation of the control and prevention program
Launched the Scoliosis Philippines Patient Registry mobile app.
* The data was presented in the 2nd Scoliosis Summit for the development of the benefit package under the Universal Health Care.
Consensus panel for the Musculoskeletal (MSK) Clinical Practice Guideline (CPG).
AIM-SEELL and PAPO Post-graduate in Healthcare Leadership and Management cohort.
At present day...
Scoliosis Philippines is a bonafide member of the Philippine Alliance of Patient Organizations (PAPO), a coalition of patient organizations advocating for universal access to healthcare and allied services and the International Alliance of Patients’ Organizations (IAPO), a unique global alliance representing patients of all nations across all disease areas and promoting patient-centered healthcare across the world.
Officers and Board of Trustees
Amanda Bonife-Kiamko
President and Founder
Joanna Lizares-Co
Vice President
Sherleen Bautista
Secretary
Jerolyn Basan
Treasurer
Board of Trustees
- Amanda Bonife-Kiamko
- Joanna Lizares-Co
- Tricia Sardinia-Peek
- Lizle De Los Reyes
- Kristine Cerenado
- Gwendale Ave
- Eunice Reyes-Ralia
- Keany Lantin
- Rizzi Biaca-Palma
- Junko Louise Villarin
